They keep her glasses where they need to be without requiring them to be extra tight on her face. Yogibo-Maya is unable to sit independently and comfortably, especially while performing a task. At the time, I found one on the mainstream market (there are at least two now-one by Orbit for toddlers and one by Combi called Zeus) but Maya was too big for it. For a better night’s sleep, the Bearhugzzz SpaceSaver bed is suitable for vulnerable adults and children. Although it was several years old and needed a new battery it works great! We carry a wide range of medical equipment by Cerebral-Palsy. However, I believe many of the things on this list can help a lot of you and I hope you find some ideas here for making your life a little easier. LEVO sit-to stand wheelchair-Inclusion and independence. As a Cerebral Palsy bed, the Freedom Bed is ideal for continued, independent movement and relief from pain, potential hip subluxation, and gastroesophageal reflux. ", AC (MD ret. 5. Though it’s a bean-bag style, the material conforms better than typical bean-bag chairs better maintaining the shapes and positions you put them in. Although it has some quirks that I have communicated to the manufacturer (such as the seatbelt cover which is far too large and hard to manipulate and the tray which needs a cup holder and is impossible to clean), it has been great for Maya and for us. Also, we are obsessed with lightweight products and, although this one is no umbrella stroller, it folds and at 25 lbs is easily carried by one person. Miraflex and Flexon Glasses-Maya got her first pair of glasses when she was a year old. Lightweight and portable, it is convenient to use in a stall where the toilets are too high, if your child struggles with balance, or for use in the back of a van. The all-terrain chair was an out of pocket purchase and we saved quite a bit by purchasing a demo. We recently got one, and I just feel like I’m doing it wrong. Safe:  The Freedom BedTM is designed with the safety of the user of paramount importance. Cerebral palsy is a group of disorders that affect movement and muscle tone or posture. Maya and I are so grateful for this product. There is also a travel pack available for when you are on the go. -Michele, I have seen first hand how these items have given your family duopoly and made your life somewhat easier. (Fortunately he landed in the seat of a Tumbleform chair so no injuries.) The activity chair is amazing and one of our “life-savers”. Reflux problmes, sleeping disorders (such as sleep apnea), and seizures are among a few of the many medical conditions that children with cerebral palsy may face, an in … She has been in our life now for a couple of years and has become a member of the family. 10. We purchased this as an alternative to an expensive hospital style or more comprehensive special needs style bed. Gathering the required information was rather hard and However, the good news is, there are many organisations who will charity fund these sorts of things. thanks for sharing this fun product! Similarly, frequent repositioning virtually eliminates the risk of pneumonia and other pulmonary problems that, again, require hospitalization to cure. Sumas WA, 98295, CANADA I am thrilled to hear that Abby is doing better than you expected. Some people/families simply don’t have the money for out of pocket expenses which is where equipment swaps/exchanges on the internet, and often through state agencies or local re-use organizations can be helpful. It provides comfortable positioning for Maya and allows us to move her from the shower to the toilet without lifting her. Over the last eight years, my husband and I have tried out countless adaptive and non-adaptive seats, chairs, blankets, silverware, cups, bikes, trikes, swings, wheelchairs, standers, walkers, etc., while trying to find what works best for Maya and for us as her caregivers. I have been brought to tears (sometimes laughing and sometimes crying) hearing Maya and Dart navigate these waters together. Accurate:  Being able to read out the rotation (repositioning) angles in one-degree increments allows for programming positions that are highly effective in the long-term care of the user. If left untreated, these complications can result in inflated medical costs and health risks for the individual. Bruno Big Lifter car wheelchair lift-Why in the world did I wait so long for this? Abbotsford, BC V2T 6G7. For the swing–how did you attach the pull bar? So obviously we have a difference in sex but we struggled with it too regarding transitions. 2. An adjustable bed is great for indigestion, reflux, colds, and positioning flexibility. Also, to note as well- since I last responded our son actually fell off the toilet, tipping the whole unit on top of himself since he was buckled in. This was a product that got a lot of use from our family. It was horrible. I hope the Zippy Sack works for all of you too. I was able to independently control if I wanted to roll over or not, and my whole body DID turn. Wow! in 2015 when I was a pupil. The wooden base provides access for a mobile hoist. Cerebral Palsy Guide was founded upon the goal of educating families about cerebral palsy, raising awareness, and providing support for children, parents, and caregivers affected by the condition. Kaye Bolster Chair-The first Kaye bolster chair we used was borrowed for several years from a local therapeutic pre-school.

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